Learning to run the relay that is special needs parenting

I think having a child with a disability is similar to learning how to run. We line up and listen to a whole lot of people tell us what we should do. Sometimes we hear them. Often we don't. They are usually talking from their own experience anyway and only slivers of what they say will have real applicable value to ourselves. Then we run: we try and try and try and try.

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Ignoring the symptoms of an ectopic pregnancy cost me a Fallopian tube

One Saturday night I was just suddenly extremely sore in my lower abdomen — because of some historical gastrointestinal issues I assumed it was just a really bad case of bloat. Then it went on for the entire week. I made some drastic diet choices. I cut out dairy and anything with bubbles or that's known to cause gas at all. I consulted Dr. Google and tried every ridiculous thing I found in forum posts or on Web MD. Meanwhile my husband got more worried by the day and gently urged (read: tried to load me in the car while I was sleeping) me to go to the doctor or the emergency room. I was so sure it was something benign that I refused to listen to reason.

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My experience with Insufficient Glandular Tissue and breastfeeding

I am mourning what I thought would happen, how I thought things would work. I am finally accepting our new relationship, and trying to not feel guilty about it. It's ok that my baby has formula, and I know breastmilk is best, but I'm doing my very best too. She is a happy, beautiful, healthy baby. I get to cuddle and snuggle her all day since I'm on maternity leave, and we have a wonderful relationship. I miss the closeness that nursing brought, but I'm glad she's comfortable, and fed.

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I deleted the photos, and put the phone down: letting go of nostalgia for the future

I recently tried to sync my phone and couldn't because it was too full. I couldn't even update my podcasts because of all the pictures and videos taking up space — so I had to pare down. Deciding which photos and videos to save and which to delete was a challenge: what if I had a few minutes on the subway and wanted to look at pictures from a few years ago? I wasn't ready.

Tips for breastfeeding a hospitalized baby

My baby was seven weeks old when he was hospitalized for the first time, and he was either not nursing, or not nursing well for two-to-three weeks. There were many times when he wasn't allowed oral nutrition at all, and I pumped. The third time he was hospitalized, however, was really difficult.